April 27th @ 2pm is our official time to be at the Auckland hospital.
The reason it has taken so long to get us up there is due to the top TPN specialist being on leave and they want 3 surgical teams to check in on Cody and over view his care and health.
We are hoping for more positive news and some extra care tips etc....
Cody had a CT scan on Monday-his pain has intensified in the last few weeks and no one can answer why. The hospital was so clever in helping with Cody's pain relief that they gave him oral panadine................he has no bowel and cant digest it?????? why would they bother? We get really tired with this sort of nonsense that just keeps happening.
Finally he is taken to his own GP who prescribes a low dose morphine...............and at long last Cody is PAIN free!!!!! but wait there's more......................................Cody's surgeon hears about this and bans all doctors and ward staff from giving it to him. There is no other pain relief for him so its back to crippling pain and vomiting each morning and night.
Cant wait to get him to Auckland and get this resolved. There must be a way to help him be pain free with out the risk of addiction and liver damage??????
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4 comments:
Roger - Have heard that Cherie in a bad way - hang in there guys am sending much healing and prayer your way. Cherie be strong my cousin - angels are helping you - sending you much empathy and support. Life can be very hard and unfair - there is a bigger love though many hugs to you all
Hiya Cody - Che'z here again, after long last. I am so glad you are finally off to Auckland, I'm sure they will get things moving along quickly and help you. I am so sorry for your pain, if something cant be done to fix you up just yet, Im sure they can get rid of the discomfort at least. Dont forget to take your "axe" with ya and start recording some songs we can auction off, okay? Make sure Nyle gets those TV3 people involved while you are up there, even though you hate the publicity, there's millions who need to hear your story and amongst them will be many who want to help. Keep strong and fight the good fight Hun - we are all still very positive and confident you are gonna come through this successfully. Love to you and your parents and Nyle, from Che'z and Sophie xxxxx
Hospitals needs to be taken to account with their arrogant way they treat the general public. A bit of humanity wouldn't go astray. They need to realise they are dealing with people - not crash test dummies which can easily be disposed of and forgotten. More training and more humanity from the doctors and some nurses caring for these people - that don't want to be there anyway. Seems we are in a third world state with our health care. Surely it can't all be about money or politics????
Roger - thinking of you in this tough time. I can remember Cherie only as a wee one and was shocked to hear the news about her. I also send my support and hugs to you all -
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