I have had a odd feeling at the pit of my stomach for a couple of months now re: Cody's care at Nelson Hospital but not knowing my rights, I didn't know what to do about it. I felt that by going to another surgeon in the same hospital would be stepping on toes and off side the surgeon we had. I am not a medical person at all, I get all mine for good old mother nature and natural instincts that most mothers develop. But most of all I owe two mothers who are fighting the same fight we are. Jodee in the states and Anita in Auckland. With out their knowledge and fight, I almost would have just gone with the flow.
Thanks to them I learnt that Cody had rights. He had the RIGHT to a second opinion. So on Monday Natalie emailed everyone on the surgical team and told them to arrange a second opinion and we wanted Auckland. By Tuesday we had not had any responses, so I rang the social worker and worked on my shout and roar tactic. It worked, she tracked down our surgeon (who was on his day off) and passed on my roar. He promptly came back to work and completed all the paper work for a referral to Auckland hospital were they are fully specialised in the kind of care Cody needs.
We have been told that we could be flying off to Auckland by end of this week or beginning of next. I am going up with Natalie and Cody as Trevor is unable to get time off work and no one wants them going up there on their own. We are just waiting on Auckland Hospital to clear a single room for Cody and we could be up there for a few days. I am hoping it is the sooner option as I must be back in Nelson by Friday morning at the latest as I have a judged event that I must race in CHCH that weekend.
I will keep you all posted.
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The auction being run for Cody has finished with the whole proceeds being donated to Cody's' Transplant Fund. Thanks with all my heart to those who were bidding.........for those whose bid didn't win.............there could be another auction some time soon. Will keep you posted on that one too.
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Contact Nyle - 0274884661 or email me on admin@truckspecialists.co.nz
Thanks so much for your offer. I would hope that we wont need to use it but it will be so nice to have a back up plan. :0)
Hey Cody,
Just thought I'd stop by and see how your feeling, hopefully much better =o)
Best of luck with your upcoming appointment in auckland =o)
Hi to all you lovely caring people - I can't thank you enough - Nyle you are a angel and without you we would be up s@#t creek as my body lets me down which is most inconvenient as it inhibits my ability to function as fully I needed. I am gobsmacked by all the support and love that is coming our way and am so relieved that we have a bit of hope left regarding cody's health status - fingers crossed and heartfelt prayers that Cody will have a fighting chance to get to transplant. He is such a strong, brave wonderful young man who rarely complains - he gets on with it and deserves a chance at life.
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