Thursday, November 27, 2008

Back to Auckland

Cody has fallen through the cracks of our health system.......again. The support network here is just not happening. So Auckland have stepped in and will bring him back up there for some training and revision. His fiscula is just not working out and so he is back to using his hicman line. Not a good solution really. He has also caught this horrid cough that is going round. It is simular to Hooping cough. He is frail enough with out getting this. Watching him cough is as painfull as the sound he makes. We all have our fingers crossed that he will come back positive and with some new energy. Will let everyone know more as I do.

Sunday, November 23, 2008

One year on and counting

Well life for Cody is still ticking along. Nothing startling has happened since his trip to the hospital...which is a good thing.

Cody now only feeds via TPN 4 nights a week and has 2 nights off. This gives him the chance to go out with mates and hang like any other normal 17 year old.

The fistula has ended up being a fizzer and is just too hard to use. It causes Cody so much pain to use. He ends up with huge bruises and then cant access the vein either. So its back to the hicman line. Not the best solution but it works.

This will be Cody's second Christmas. A huge milestone really as all the surgeons said he wouldn't live to see last Christmas.....but here he is. A credit to his determination really.