Xmas 2011

I think the above photo says it all!!!

This is Cody with his older brother Jefford. They went out a couple of months ago for a few quiet drinks and this photo was snapped. It shows a much happier and healthier Cody. Something we were all told would NEVER happen.

Next month Cody will turn 21!!!

From here on in this blog will be updated yearly on his birthday - all due to Cody doing so well.

Happy Birthday!!!!!

Today Cody turns 20!!!!

This is something that we were told probably would not happen. In fact there were days that were we sure this would not happen.

But Cody showed every one how wrong they were and what a fighter he was.

Cody has showed so much courage and determination over the last few years and it has been the making of a remarkable man!!

I wish you all the best for today and for the many more birthdays I know we will all share with you.

Another year down the track

Its hard to believe yet another year has gone past. Nothing dramatic has happened for Cody and in this we say "thank god"!

The fistular operation has been a huge success and has given Cody more freedom. Cody has not been able to return to his course as he has just not regained the weight lost from the stress of it all.

The only negative for Cody is pain.....sadly this is a common side effect and nothing really can be done, you just live with it and managing it.

On a positive note - Cody got his restricted!!!!



here is Cody jammin on the door step.

Tech for Cody

A quick update.....

Cody applied to be excepted to the NMIT for a Chef Course. He found out last week that he has been excepted and starts this Monday. It goes for the year and will gain him qualifications to help with his dream of being a Chef. Who knows....one day he may yet own his own restaurant.

He has also been having driving lessons and hopes to be mobile by June when he can sit his restricted.

It is a pleasure and a joy to see this young man develop and grow and achieve what we were all told would be impossible.

2 years on and he is alive, eating and getting back to his normal way of life. All of which we were told would never happen.

I will up date here as he progress's through his course.

Another Year has passed.....

So as told .. Cody had his hicman line removed....the reason for his is to keep his last veins clear and capable to be used when transplant becomes necessary. Which now means that he has to use his fistula as that is the only way he can feed with his TPN now. This also means that if he can master his fistula it will put off the need for transplant for at least 5 possibly 10 years. That is great news as the transplant is not an option we want to head for until we have too.

The specialists in Auckland are amazed at Cody with the fact he can eat so much. He was told that he should only be able to taste food...meaning small mouth fulls, but Cody has been able to eat full meals. So far he is not gaining any nourishment, but with Cody so far deifying everything that the Doctors have said he cant do...............who knows what the future can hold for him.

The best news is that Cody sat his learners licence and passed it.......so now he can start driving and getting a little more independent.

Christmas came and went, and we all reflected on the fact that it is nothing short of a miracle that he is still here and do so well. Cody was told he would most likely not make a year...............and here he is ... TWO years on.

Now to see that he is still here in TEN years time.

Back to Auckland

Cody has fallen through the cracks of our health system.......again. The support network here is just not happening. So Auckland have stepped in and will bring him back up there for some training and revision. His fiscula is just not working out and so he is back to using his hicman line. Not a good solution really. He has also caught this horrid cough that is going round. It is simular to Hooping cough. He is frail enough with out getting this. Watching him cough is as painfull as the sound he makes. We all have our fingers crossed that he will come back positive and with some new energy. Will let everyone know more as I do.

One year on and counting

Well life for Cody is still ticking along. Nothing startling has happened since his trip to the hospital...which is a good thing.

Cody now only feeds via TPN 4 nights a week and has 2 nights off. This gives him the chance to go out with mates and hang like any other normal 17 year old.

The fistula has ended up being a fizzer and is just too hard to use. It causes Cody so much pain to use. He ends up with huge bruises and then cant access the vein either. So its back to the hicman line. Not the best solution but it works.

This will be Cody's second Christmas. A huge milestone really as all the surgeons said he wouldn't live to see last Christmas.....but here he is. A credit to his determination really.